About this episode
Today I’m talking to Sarah Land, another wonderful person who is using her own lived experience to help others.Until a short time ago, I hadn’t heard about Sarah, who is the founder of the Peeps H.I.E. Charity.Now I seem to be hearing about her everywhere I go. Such is the nature of networking. And, very rewarding in the context of my strong belief that these inspirational stories need a much wider audience!Thank you, Rachel Crook, (Episode 34) for introducing me to Sarah and to everyone driving positive change for young families.Lemon lightbulbs ???Sarah Land’s lived experience made her HIGHLY qualified to set up the Peeps H.I.E charityHIE - Hypoxic Ischemic Encephalopathy- what is it?Lived experience needs to be properly valuedHealthcare professionals and parents need to work TOGETHER (the new professional panel will build on the successful parent panelPeer support is very importantEach family’s experience is different - care needs to be personalisedSome parents will be desperate to go home after a stay in neonatal unit; others will be terrifiedGoing home with a new baby is tough at the test of timesParents can contact the charity when the time is right for themWe need to ensure good work that relies strongly on individuals is sustainableNetworking is strong – there are strong links to our Whose Shoes #FICare projectThe power of Twitter! Connect and join forces with other people with similar passionsGetting the balance right - Family Integrated Care is the goal but make sure there is always proper supportPrepare for going home, feeling empowered rather than under pressureThink differently – focus on improving lives rather than just measuring 'bed days' and financial outcomesWhose Shoes thinking - bring in more humanity!People need to feel free to laugh and enjoy life, even when things are difficultListen to people and see them as individualsLet’s raise awareness of H.I.E! Links and resourcesFind out more about: Peeps H.I.E charity Episode 13: Yvonne Newbold MBE – founder of Newbold HopeEpisode 34: Rachel Crook: caring for little ones, as a mum and a nurse!We LOVE it when you leave a review!If you enjoy my podcast and find these conversations usefulplease share your thoughts by leaving a review (Spotify or Apple are easiest to leave a review - navigate via 3 dots) and comment on your favourite episodes.Connect with me - Gill Phillips - on LinkedIn, especially if you are interested in our brand new #CYPWhoseShoes resources or our well-established
