About this episode
Love to hear from you don’t be shy send me a message ✨https://www.blogpreston.co.uk/2026/01/teenager-is-one-of-just-25-people-in-the-world-with-ultra-rare-neurodiversity/In this episode, I’m sharing a really personal and important conversation — one that so many parents will recognise.This episode is about fighting the system for our children.About that deep gut feeling when you know something isn’t right — even when professionals can’t yet give you answers.I talk openly about:Our journey towards diagnosisWhat MSL2 is, explained simplyWhy rare genetic conditions often take years to be identifiedThe emotional toll of constantly advocating for your childThe frustration, exhaustion, and strength that comes with navigating assessments, referrals, and systems that aren’t built for complexityThis episode isn’t about blame — it’s about awareness, validation, and letting parents know they are not imagining things, not being dramatic, and not alone.If you’re a parent who’s ever been told to “wait and see” while your instincts scream otherwise — this episode is for you.And if sharing our story helps even one family feel seen, supported, or encouraged to keep pushing for answers, then it’s worth it 💛Thank you for listening, for sharing, and for helping raise awareness around rare genetic conditions like MSL2.Please contact me for any support if you're feeling called to go deeper - to align more, create more, and really step into that next version of you - you'll find everything you need in my linktree. From my book Manifesting through Motherhood to powerful ways we can work together, it's all there waiting for you. Support the showIf you want to join my private Facebook group or join my membership or work with me 1-1 you can find out more in the link below ⬇️ All my social media handles are in the link below You can also purchase my book browse my journals below 🫶https://linktr.ee/Manifesting_through_Motherhood
