About this episode
What if every milestone your child was supposed to reach came with countless curve balls? For Alexis Kaplan, motherhood quickly turned into a journey of advocacy, strength, and unwavering love as she navigated her daughter Gabby's complex and rare health conditions. In this moving episode, Alexis shares: ? The moment her newborn was rushed to the NICU with a collapsed lung ? How her daughter's recurring infections led to a diagnosis of immunodeficiency and collagenous gastritis ? The emotional toll—and strength—of being the medical historian and advocate for a medically complex child ? How weekly infusions, therapy, and figure skating are helping her daughter thrive ? Her advice for parents facing rare, chronic, or undiagnosed conditions This is a must-listen for anyone caring for a child with complex medical needs, healthcare providers who want to better understand the family perspective, and parents looking for inspiration and connection. Timestamps & Key Topics ?? [00:00] – Meet Alexis Kaplan Mother of two, former PR pro, and fierce advocate for her daughter Gabby ?? [03:00] – From a Healthy Start to a Medical Emergency Gabby is born with a spontaneous pneumothorax and was immediately taken to the NICU ?? [08:00] – Life After NICU The strange silence in the hospital room and the emotional weight of an unexpected start ?? [10:00] – Feeding Struggles and Early Signs Something Was Wrong Eczema, weight loss, food intolerance—and a mother's instinct in full force ?? [14:00] – The Fevers Begin Raging fevers, unrelenting illness, and a trip to the ER that revealed double pneumonia and RSV ?? [19:00] – ENT Visits, Hearing Loss, and the Power of Child Life From audiology tests to the first Barbie from a Child Life Specialist—how support changed their hospital experience ?? [22:00] – Asthma, Immunology & The First "Red Flag" Gabby's pulmonologist recommends deeper testing, leading to a pivotal moment in her diagnosis journey ?? [24:00] – Periodic Fever Syndrome & Tonsillectomy A working diagnosis leads to aggressive treatment—but symptoms persist ?? [26:00] – Gastroenterology, Scopes & the Search for Answers A rare diagnosis: collagenous gastritis—so rare, the doctor had never seen it before ?? [29:00] – The Diagnosis That Changed Everything Immunoglobulin deficiency is confirmed, leading to weekly subcutaneous infusions at home ?? [31:00] – A Grey's Anatomy Ritual & Finding Control Gabby takes charge of her infusions, watches Grey's Anatomy, and finds a routine in the chaos ?? [32:00] – Advocating for the Right Medication Alexis does her own research and fights for biologic treatment to manage Gabby's symptoms ?? [34:00] – Reflecting on Strength, Resilience & Motherhood T
